Ehlers-Danlos Syndrome

Erin Bafunno, DPT, Nicole Gardner, DPT, and Adrienne Loukopoulos, MSOT discuss Ehlers-Danlos Syndrome, known as EDS. Patients affected by this disease face a unique challenge; the therapists talk treatment and try to raise awareness about EDS.

What is Ehlers-Danlos Syndrome, what are the diagnosis requirements (1:37)? What signs can you look for if you think you or a loved one might have EDS (7:15)? What are PTs and OTs looking at as warning signs of EDS, what is the Beighton scale, and the 5 part questionnaire for EDS (11:18)? We discuss the postural orthostatic tachycardia syndrome (POTS) relationship to EDS (15:50). Then we dive into the treatment of patients with EDS and the communication needed between healthcare providers for a successful treatment strategy (17:50). Resources for those with EDS and the importance of finding a supportive community (32:45).

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